Billee is our beautiful and precious 2 year old little girl who suffers from a very rare brain disorder called Lissencephaly.
Lissencephaly, which literally means smooth brain, is a rare brain formation disorder characterised by the lack of normal convolutions (folds) in the brain. It is caused by defective neuronal migration, the process in which nerve cells move from their place of origin to their permanent location.
The surface of a normal brain is formed by a complex series of folds and grooves. The folds are called gyri or convolutions, and the grooves are called sulci. In children with lissencephaly, the normal convolutions are absent or only partly formed, making the surface of the brain smooth.
The prognosis for children with lissencephaly varies depending on the degree of brain malformation. Many children show no significant development beyond a 3- to 5-month-old level.
We believe in giving Billee every opportunity possible to reach her full potential.
We felt some time ago that standard physio and OT just didn't seem to be helping and we went searching for other more effective therapies.
Billee recently started M.A.P.S. and this blog follows our journey with this therapy.
Billee also has a website which is updated monthly :
http://www.beautifulbillee.com.au/
So here goes with the whole blogging experience.......
