Thursday, March 31, 2011

Good Intentions.....!

Well so much for me blogging daily or even weekly, it's been almost 6 months!!

So much has happened.........

Billee is doing well, we received the results of all the tests only to be told that everything is normal.
This is a good thing of course but it didn't explain the pain she seemed to be in.
We have started to see a Kinesiologist and have just had more tests done!

These included a hair analysis, stool test and finger prick blood test for candida.
It seems that the only thing to have come from these is that Billee has an in balance of good and bad bacteria in her gut.
We are now giving her a pro biotic to help balance this out.

She has also started to see an osteopath and continues to have her reflexes integrated by her kinesiologist.

Billee also started wearing glasses in the past 6 months.
She only wears them sometimes and at the moment we are not convinced that they make too much of a difference.

Three weeks ago Billee started preschool for 1 day per week.
I'm happy to say that she really seems to enjoy it.
She has hydrotherapy whilst she is there and that alone for me was a huge draw card as I've been wanting her to do this for ages but finding a suitable class was proving to be hard.
Glenn stays with her through hydro and then also during the day she has speech therapy and a little OT.
She seems to enjoy the story and group times. There are only 4 children in her class and 1 teacher and a helper so I am very pleased with that.

As you know Billee has been on the ketogenic diet for almost 18 months now and we were in the process of weaning her off the 3 anti convulsants that she was on.
This is a very long process and we made it all the way to the lowest dose of the last drug and only had 1 week to go until she was drug free.
Unfortunately she had 2 seizures in the last 2 weeks so we have now increased the lamictal back to a reasonable dose.
We are now praying that this will be enough to keep the seizures at bay.
After seeing Billee having a seizure (after being seizure free since July 2009) we have decided that having to be on drugs isn't the end of the world if it means we get to keep our baby girl!

Billee continues with her M.A.P.S therapy program and in my opinion we continue to see little improvements.

We moved house in the last 6 months and our other major news is that Billee is going to be a big sister in 6 weeks time!
I am pregnant with a little baby sister for Billee.

We are hoping and praying that as they grow together the baby may teach Billee and encourage her to develop a little more.

So things are hectic at the moment at our house.
This pregnancy has been the worst for me! I have had every complaint possible and have gained far too much weight for my liking!
Not to mention how uncomfortable being pregnant during summer has been!

I am counting down the weeks left and praying for the safe arrival of our new baby.

I have been very frustrated at not being able to do the normal things with Billee and I can't wait to get my energy and motivation back once again!

If any of you want to read more about our journey with Billee and if you find it's been a while since I have blogged please visit her website which I update monthly.

It's www.beautifulbillee.com.au

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