Day 34

Billee has been shouting all day!
Honestly she has been so noisy today which is obviously fantastic.
Last night she said something, we're not sure what it was but it was just a really different, 'normal' babble sound unlike her normal noises.
Glenn and I just looked at each other in shock.
I'm so glad we both heard it otherwise I wouldn't have believed it!


It was so funny because it really meant nothing but to us it meant everything!


A couple of days ago Billee was laying on her bed and I could hear her laughing.
I crept up to the door of her bedroom and peeped in.
She had rolled from her back to her tummy and was moving her leg up and down.
She was finding this hilarious!
Naturally I got the camera and videod it!


I've been thinking lately about other peoples perception of me.
When we were first told of Billee's diagnosis I couldn't speak about it to anyone without sobbing uncontrollably which usually ended up in the other person in tears also.
I never thought there would be a time when this didn't happen.


Now when I talk to people about my 3 girls and I say Billee has a very rare brain disorder I say it so matter of factly that I wonder what people must think?
I see the look on their faces when I tell them that she has a seizure disorder, is visually impaired and tube fed and doesn't crawl, walk or talk etc...


Some people don't really know how to react. Most people are very sad.
But they don't know Billee and how wonderful she is.


The truth is even though I will never accept Billee's prognosis I accept that she is who she is. I haven't cried for ages about her not being 'normal'. I'm sure I will shed lots more tears but at the moment I am just so thankful that she isn't having seizures (touch wood!) and that she is healthy, happy and aware.


I feel very lucky and blessed to have her in my life and I know that this has happened to her for a reason. She is teaching us all so much, even her big sisters. She is making us all better, more compassionate people.

She is a miracle in the making............